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	<title>Comments on: Genetic counseling as a patient right, not as a progress killer</title>
	<atom:link href="http://biopinionated.com/2008/06/20/genetic-counseling-as-a-patient-right-not-as-a-progress-killer/feed/" rel="self" type="application/rss+xml" />
	<link>http://biopinionated.com/2008/06/20/genetic-counseling-as-a-patient-right-not-as-a-progress-killer/</link>
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		<title>By: Bookmarks about Pharmacogenetics</title>
		<link>http://biopinionated.com/2008/06/20/genetic-counseling-as-a-patient-right-not-as-a-progress-killer/#comment-131</link>
		<dc:creator><![CDATA[Bookmarks about Pharmacogenetics]]></dc:creator>
		<pubDate>Tue, 15 Jul 2008 13:30:23 +0000</pubDate>
		<guid isPermaLink="false">http://sciphu.wordpress.com/?p=113#comment-131</guid>
		<description><![CDATA[[...] - bookmarked by 1 members originally found by misoville on July 12, 2008  Genetic counseling as a patient right, not as a progress killer  [...]]]></description>
		<content:encoded><![CDATA[<p>[...] &#8211; bookmarked by 1 members originally found by misoville on July 12, 2008  Genetic counseling as a patient right, not as a progress killer  [...]</p>
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		<title>By: Steve Murphy MD</title>
		<link>http://biopinionated.com/2008/06/20/genetic-counseling-as-a-patient-right-not-as-a-progress-killer/#comment-119</link>
		<dc:creator><![CDATA[Steve Murphy MD]]></dc:creator>
		<pubDate>Sat, 21 Jun 2008 18:32:24 +0000</pubDate>
		<guid isPermaLink="false">http://sciphu.wordpress.com/?p=113#comment-119</guid>
		<description><![CDATA[Sciphu,

&quot;I can tell you that I live in a country where genetic testing is regulated extensively: any pre-diagnostic or pre-symptomatic test can only be done by a few authorized (public) medical genetics centers, and must be followed by genetic counseling both before and after testing. These strict test-definitions actually include “innocent” tests like cyp-testing for pharmacogenetics. I can promise you that you do not want a situation like this. Over-regulation hinders progress and takes away personal freedom.&quot;

I totally agree with you in this excellent aspect. We should be expanding the services not restricting them. But that expansion should be done responsibly, ethically, and with a duty to the consumer/patient to follow up results. If your provider/SNP company can&#039;t guarantee accurate follow up, then you shouldn&#039;t receive the testing. I can&#039;t assume the patient/consumer to do that theirself (is that a word?). It is my responsibility as a physician to do that follow up. This is the HUGE difference between a healthcare provider and a company. 

-Steve]]></description>
		<content:encoded><![CDATA[<p>Sciphu,</p>
<p>&#8220;I can tell you that I live in a country where genetic testing is regulated extensively: any pre-diagnostic or pre-symptomatic test can only be done by a few authorized (public) medical genetics centers, and must be followed by genetic counseling both before and after testing. These strict test-definitions actually include “innocent” tests like cyp-testing for pharmacogenetics. I can promise you that you do not want a situation like this. Over-regulation hinders progress and takes away personal freedom.&#8221;</p>
<p>I totally agree with you in this excellent aspect. We should be expanding the services not restricting them. But that expansion should be done responsibly, ethically, and with a duty to the consumer/patient to follow up results. If your provider/SNP company can&#8217;t guarantee accurate follow up, then you shouldn&#8217;t receive the testing. I can&#8217;t assume the patient/consumer to do that theirself (is that a word?). It is my responsibility as a physician to do that follow up. This is the HUGE difference between a healthcare provider and a company. </p>
<p>-Steve</p>
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